Non-white, older or less educated patients report even greater benefits than others.įor Sarah Ford, 34, of Pittsburgh, who has multiple sclerosis, reading her doctor’s notes helps her make the most of each visit and feel informed. Patients who read their notes understand more about their health, better remember their treatment plan and are more likely to stick to their medication regimen. Studies have shown numerous benefits of note sharing. Privacy rules under the Health Insurance Portability and Accountability Act, which limit sharing of personal health information outside a clinic, remain in place, although privacy advocates have warned that patients who choose to share their data with consumer apps will put their data at risk. The rule aims not only to remove these barriers, but also to enable patients to access their health records through smartphone apps, and prevent health care providers from withholding information from other providers and health IT companies when a patient wants it to be shared. Patients have long had a legal right to their medical records but often have had to pay fees, wait weeks or sift through reams of paper to see them. And doctors’ groups say they are confused and concerned about whether the notes of adolescent patients who don’t want their parents to see sensitive information can be exempt - or if they will have to breach their patients’ trust. Like Ramsey, some patients have felt distressed when seeing test results dropped into their portal without a physician’s explanation. (Edward Brown/AcademyHealth)īut the rollout of the rule has hit bumps, as doctors learn that patients might see information before they do. Tom Delbanco co-founded OpenNotes, a group that has pushed for providers to share notes with patients. “A decade ago, the medical record belonged to the physician.” Jan Walker and Dr. “This levels the playing field,” said Jan Walker, co-founder of OpenNotes, a group that has pushed for providers to share notes with patients. Many patients may now find their doctors’ clinical notes, test results and other medical data posted to their electronic portal as soon as they are available.Īdvocates herald the rule as a long-awaited opportunity for patients to control their data and health. On April 5, a federal rule went into effect that requires health care providers to give patients like Ramsey electronic access to their health information without delay upon request, at no cost. #CLOSING TIME DOCTOR WHO WATCH ONLINE FREE#Subscribe to California Healthline's free Daily Edition.
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